Hersche-Cupelli, Ruth and Weise, Andrea and Barbero, Marco and Kool, Jan (2018) Three-week inpatient energy management education (IEME) for persons with multiple sclerosis–related fatigue. In: UNSPECIFIED, 21.05.2018-25.05.2018, Cape Town.
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Abstract
Introduction/Rationale: Fatigue is one of the main causes of restricted quality of life among persons with multiple sclerosis (pwMS). Despite good efficacy of fatigue management and energy conservation education these courses cannot be implemented in Switzerland, because they do not fit the needs of pwMS and healthcare organizations. An education program which allows participants to begin and end at any day of the week is needed for the inpatient rehabilitation context Objectives: The aim is to develop a treatment protocol based on scientific literature and compatible with the context of a typical Swiss rehabilitation center and to conduct a feasibility study to verify a study protocol of a future randomized clinical trial. Method: For the development of the materials a mixed-methods approach has been used which included the training of OTs, a test-treatment of 15 pwMS, and the evaluation of this experiences in two focus groups to improve the program and the materials. After part 1 a small-scale RCT will be conducted to examine the feasibility of the study protocol and the scientific metrics for a larger-scale RCT. Results The IEME consists of one individual and six group sessions (total 6h). IEME group sessions are delivered with a circular order at two fixed days the week and self-training and reflective tasks which fit in the inpatient setting in between Participants confirm the powerful effect of group setting on the motivation to critically question and change behavioral routines. Results part 2: March 2018 Conclusion: The critical aspect, if the transfer of newly gained insights and daily routines from the inpatient setting to the domestic context will have success, can only be answered in July 2017.
| Item Type: | Article in conference proceedings or Presentation at a conference (Poster) |
|---|---|
| Subjects: | Subjects Allied to Medicine > Others in subjects allied to medicine > Counselling |
| Department/unit: | Dipartimento economia aziendale, sanità e sociale > Laboratorio di ricerca in riabilitazione |
| Depositing User: | Ruth Hersche-Cupelli |
| Date Deposited: | 25 Jun 2018 05:47 |
| Last Modified: | 25 Jun 2018 05:47 |
| URI: | http://repository.supsi.ch/id/eprint/9559 |
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