Aceti, M and Caiata Zufferey, Maria and Schweighoffer, R and Baroutsou, V and Pedrazzani, C and Katapodi, M and Kim, S (2022) Conceptions of responsibility to communicate genetic information and risk about hereditary breast and ovarian cancer: a Swiss-Korean qualitative comparative analysis. In: 11th Global Breast Cancer Conference, 28-30.4.2022, Seoul, South Korea.
Full text not available from this repository.Abstract
Background: This study aims to understand cultural differences and similarities between Swiss and Korean women carrying BRCA1 or BRCA2 pathogenic variants about their notions of responsibility to disclose genetic information and risk about hereditary cancer to relatives. Using qualitative data from the CASCADE study, an international cohort of hereditary breast and ovarian cancer (HBOC) families, we investigate the different issues encountered by Korean and Swiss families, with a focus on culturally diverging conceptions of responsibility and family. Method: In-depth qualitative interviews from 22 Korean and 57 Swiss HBOC cases were transcribed verbatim and were translated from Korean, French, Italian and Swiss German to English. Preliminary analysis has been done with 14 interviews using MaxQDA and a mind-mapping analysis tool by an interdisciplinary and bi-national team. Result: Factors linked to Life Course Perspective, relatives’ experiences with cancer and individual, relational and structural dimensions can either hinder or sustain the weight of responsibility. We identified several levels of responsibility and 4 models: ‘overwhelming’, ‘leading’, ‘shared’, and ‘soft’ responsibility. Differences between Swiss and Korean women were mainly identified in the model of ‘shared’ responsibility. Older Korean women discussed more often the topic of nuclear family solidarity, and issues regarding the Korean extended family system. Swiss and young Korean women refer more frequently to individual patterns of responsibility that are characteristic of the ‘leading’ and ‘soft’ models. Conclusion: Capturing subtle cultural specificities regarding different conceptions of responsibility supports culturally appropriate interventions. Findings can be used in clinical practice to support genetic information disclosure.
| Item Type: | Article in conference proceedings or Presentation at a conference (Poster) |
|---|---|
| Subjects: | Social studies |
| Department/unit: | Dipartimento economia aziendale, sanità e sociale > Centro competenze pratiche e politiche sanitarie |
| Depositing User: | Maria Caiata Zufferey |
| Date Deposited: | 01 Jun 2022 09:49 |
| Last Modified: | 17 Oct 2023 10:00 |
| URI: | http://repository.supsi.ch/id/eprint/13425 |
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