Pedrazzani, Carla Ambrogina and Ming, C and Burki, N and Caiata Zufferey, Maria and Chappuis, P and Duquette, D and Heinimann, K and Heinzelmann-Schwarz, V and Graffeo-Galbiati, R and Merajver, SD and Milliron, KJ and Monnerat, C and Pagani, Olivia and Rabaglio, M and Katapodi, M (2021) Genetic Literacy and Communication of Genetic Information in Families Concerned with Hereditary Breast and Ovarian Cancer: A Cross-Study Comparison in Two Countries and within a Timeframe of More than 10 Years. Cancers, 13 (24). p. 6254.
Full text not available from this repository.Abstract
This cross-study comparison uses data collected over 10 years from families living in the US and in Switzerland in order to compare genetic literacy between individuals who had genetic counselling for hereditary breast/ovarian cancer (HBOC) and one or more of their relatives who did not, and examines factors influencing genetic literacy both at the individual and at the family level. The study identifies genetic risk factors and signs of HBOC that remain unclear, even to individuals who had genetic consultation, and highlights the gaps in the dissemination of genetic information. Sensitivity analysis examines the dissemination of genetic information from the individual who had counselling to relatives within the same family that did not.
| Item Type: | Scientific journal article, Newspaper article or Magazine article |
|---|---|
| Subjects: | Social studies |
| Department/unit: | Dipartimento economia aziendale, sanità e sociale > Centro competenze pratiche e politiche sanitarie |
| Depositing User: | Maria Caiata Zufferey |
| Date Deposited: | 14 Dec 2021 13:09 |
| Last Modified: | 17 Oct 2023 10:00 |
| URI: | http://repository.supsi.ch/id/eprint/13096 |
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