Feasibility and Preliminary Results of a Short Inpatient Energy-Management Education for Person with MS-fatigue

Hersche-Cupelli, Ruth and Weise, Andrea and Della Bella, Sara and Michel, Gisela and Barbero, Marco and Kool, Jan (2019) Feasibility and Preliminary Results of a Short Inpatient Energy-Management Education for Person with MS-fatigue. Archives of physical medicine and rehabilitation, 100 (10). e77-e77. ISSN 1532-821X

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Abstract

Objective: To explore the feasibility, effect, and costs of a newly developed inpatient energy management education (IEME). Design: Feasibility randomized controlled trial with mixed methods analysis. Setting: 3-week multidisciplinary inpatient rehabilitation. Participants (or Animals, Specimens, Cadavers): Random sample of 47 persons with MS-related fatigue (FSS >4), >18 years, EDSS (�6.5). Exclusion criteria: depression or cognitive impairment. Interventions: Six IEME (intervention) or progressive muscle relaxation(PMR; control) group sessions (1x6h) during a personalized rehabilitation program. IEME was led by an occupational therapist (OT). An individual introduction session was followed by five group sessions on break management, occupational balance, ergonomics, activity analysis, communication. Participants trained the use of energy conservation strategies and planned the implementation of behavioral change in their daily routine. Main Outcome Measure(s): User-experiences was assessed by focus groups and telephone interviews. Amount of group and individual OT-treatmentminutes consumed. Change in fatigue impact, self-efficacy, occupational performance and quality of life between baseline (T0), discharge (T1) and 16 weeks follow-up (T2). Results: IEME participants confirmed the adequacy of the developed program. OTs reported high treatment fidelity. Within-group difference on fatigue impact and some dimensions of quality of life (QoL) at discharge were significant (p < 0.05) in both groups. The IEME alone resulted in significant improvements in self-efficacy in performing energy conservation strategies (p Z 0.001) and in the perceived physical functioning dimension of QoL, with large effect sizes at T2 (d: 1.32, CI: 2.11 - 0.53), despite less OT minutes. Conclusions: IEME positively influenced the perception of competence in performing daily activities and reduced the perceived influence of MSfatigue on physical functioning. This cost-friendly intervention may help persons with MS-related fatigue to better manage their energy.

Item Type:	Scientific journal article, Newspaper article or Magazine article
Uncontrolled Keywords:	Self-management, Fatigue, Multiple sclerosis, Occupational Therapy, Quality of life
Subjects:	Subjects Allied to Medicine > Others in subjects allied to medicine > Occupational therapy
Department/unit:	Dipartimento economia aziendale, sanità e sociale > Laboratorio di ricerca in riabilitazione
Depositing User:	Ruth Hersche-Cupelli
Date Deposited:	08 Jan 2020 07:27
Last Modified:	08 Jan 2020 07:27
URI:	http://repository.supsi.ch/id/eprint/11400

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